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Resources & Support

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EDAN publishes data and does not advise individuals. These are the organizations that help people with epilepsy directly, in Minnesota and nationally. Listing a clinic is not an endorsement.

In an emergency, call 911.

For mental-health crisis support, call or text 988 (Suicide & Crisis Lifeline), free and available 24/7.

Minnesota

Epilepsy Foundation of Minnesota (EFMN), https://www.epilepsyfoundationmn.org Phone 651-287-2300 · info@efmn.org. Free, statewide support:

  • Personalized support & care coordination (phone, video, in person; English and Spanish)
  • Community Health Workers who connect families to healthcare and social services
  • Connect Groups (support groups): adult, parent/caregiver, young adult, teen, and Spanish
  • Camps: Camp Oz (overnight, ages 9-17), Day Camp (ages 6-12), and Family Camp
  • Seizure Smart trainings (free, for schools, workplaces, and community groups)
  • Public policy advocacy; its 2026 priorities included limits on epilepsy medication cost sharing and SUDEP

Minnesota Department of Health, "Managing Seizures in School", https://www.health.state.mn.us/people/childrenyouth/schoolhealth/hco/seizurestoolkit.html The state's seizure toolkit: links to seizure action plan templates, a training validation tool, and an implementation checklist.

Pediatric epilepsy centers in Minnesota (informational listing, not a recommendation)

National

Epilepsy Foundation Helpline, https://www.epilepsy.com/helpline 1-800-332-1000 (English) · 1-866-748-8008 (Spanish). Note: live specialists answer Monday to Friday, 8am-8pm ET; outside those hours it's self-service (online form + assistant).

CDC Epilepsy, https://www.cdc.gov/epilepsy/index.html (family and school guidance, first aid).

SUDEP (Sudden Unexpected Death in Epilepsy)

Questions about SUDEP risk belong with a neurologist. For information and support:

EDAN's own Minnesota death data is on the SUDEP initiative page.

Help affording medication

If you are in crisis

If someone is in immediate danger, call 911.

Checked 20 September 2026 against 988lifeline.org and crisistextline.org.

Mental health support

Driving in Minnesota

This directory is informational and not medical, legal, or financial advice. Links and phone numbers were last checked in September 2026; if you find something out of date, please email edanmnorg@gmail.com.