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About EDAN

EDAN, the Epilepsy Data & Advocacy Network, is a student-led project that assembles public data about epilepsy and publishes it where people can use it. Our work starts in Minnesota and is built to travel to other states. The information we work with is public, in the sense that nobody is hiding it, and it is also effectively out of reach: one PDF per school district, a report appendix, a database that keeps only what is current, a list sold rather than published. We collect it, document how we got it, and put it in one place.

We are not clinicians and we do not give medical or legal advice. For questions about care, we point to the people qualified to answer them.

Our approach

We follow one repeatable model that can be pointed at many different epilepsy challenges:

  1. Map: use open, public data to find where needs and gaps actually are.
  2. Translate: turn complex clinical, legal, and statistical material into plain language anyone can use.
  3. Deliver: put free, ready-to-use resources where they help most, and partner with the organizations already equipped to act at scale.

We do not duplicate the excellent work of existing epilepsy organizations. We use data to point that work, and our own resources, where they are needed most.

Seizure-Safe Schools (Minnesota)

Our flagship project applies this model to school safety. Minnesota law (Minn. Stat. 121A.24) requires every public and charter school to prepare an individualized seizure action plan for a student once a family notifies them of the diagnosis, and to train staff to respond. But we found that about 70% of Minnesota school districts do not post a seizure plan, or even a template a family could use to request one, with the gap largest in the smallest, least-resourced districts. See The Data: Mapping the Gaps, look up your district in Find Your District, and find free resources in How to Help. This interactive textbook is part of that project.

In the news

The Minnesota Star Tribune published EDAN founder Rishik Kondadadi's commentary, "If a student had a seizure in the classroom, would your school be prepared?" (July 23, 2026), arguing that more Minnesota schools should post seizure action plans where families can actually find them.

Where we are headed

The same method now runs five initiatives: verified adoption of school seizure plans, a data partnership with the new Minnesota Epilepsy Program at MDH, medication access, distance to care, and SUDEP. Each has a page, a status, and a number, on Initiatives. Our measure for 2026-27 is at least twenty people with epilepsy whose situation we can document changing because of this work.

Who we are

EDAN is run by students. We are non-commercial, and everything we produce is free to use and adapt.

  • Rishik Kondadadi, founder. Junior at Eastview High School, Apple Valley.
  • Aaryav Sharma, sophomore at Eastview High School.
  • Rikhil Kondadadi, eighth grader at Scott Highlands Middle School.

Get involved or get in touch

  • Families and schools: see How to Help.
  • Ideas, corrections, partnerships, or to tell us your district adopted a plan: reach out below.

Contact: Rishik Kondadadi, Epilepsy Data & Advocacy Network (EDAN). Email: edanmnorg@gmail.com ยท LinkedIn: https://www.linkedin.com/in/krishikk/

Disclaimer

EDAN's materials are informational and are not legal or medical advice. Where we report on seizure plans, we measure whether they are publicly findable, which is not the same as legal compliance. A person's epilepsy care must be set by their licensed healthcare provider. In an emergency, call 911.